Prohibition of genetic discrimination in public international law

Klaudia Kofin-Brończyk

University of Silesia , Poland
https://orcid.org/0000-0003-4273-2595


Abstract

Genetic discrimination means treating someone differently because of their genetic traits, which make it possible to determine what health predispositions a person has. Examples include a genetic predisposition to Huntington’s disease or the risk of developing colorectal cancer. From a legal perspective, an important issue arises: can knowledge of genetic data be used in a way that is discriminatory towards the individual? For example, the problem may be that the insurer refuses to enter into a life insurance contract with us or increases our premium.

The first research method is the dogmatic analysis, which includes two elements: the quantitative and quali­tative method of making an inventory of international law and the legal-dogmatic method, i.e. the critical analy­sis of literature and case law. The second research method is a comparative legal analysis, which aims to compare regulations found in the universal and regional human rights systems.

The aim of this article is to examine the extent to which the prohibition of genetic discrimination is reg­ulated in public international law. Why should genetic discrimination be singled out against general anti-dis­crimination standards? Many legal acts (e.g. the Universal Declaration of Human Rights) contain general anti- -discrimination standards. However, examples of genetic discrimination indicate that current regulations may not be sufficient. This article also attempts to answer the question of what genetic discrimination is.

Keywords:

genetic discrimination, genetic data, human rights



Bańczyk W., „Miękkie prawo, ale prawo”, czyli o obowiązku przestrzegania soft law, Internetowy Przegląd Prawniczy TBSP UJ 2016, nr 1.

Berkman B.E., Hull S.C., The “Right Not to Know” in the Genomic Era: Time to Break From Tradition?, The American Journal of Bioethics 2014, t. 14, nr 3, DOI: 10.1080/15265161.2014.880313. (Crossref)

Billings P.R. i in., Discrimination as a Consequence of Genetic Testing, American Journal of Human Genetics 1992, t. 50.

Bogdańska B., Kategoria godności jako filozoficzne uzasadnienie współczesnej koncepcji praw człowieka, w: O prawach człowieka nieco inaczej, red. R. Moń, A. Kobyliński, Warszawa 2011.

Burgermeister J., Teacher Was Refused Job Because Relatives Have Huntington’s Disease, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC214077/ [dostęp: 25.04.2021 r.].

Cohen A., Imbeciles. The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck, New York 2016.

Dudek T., Metody interpretacji Konwencji o ochronie praw człowieka i podstawowych wolności na przykładzie spraw dotyczących dyskryminacji ze względu na orientację seksualną i tożsamość płciową, Warszawa 2015.

Grzymkowska M., Standardy bioetyczne w prawie europejskim, Warszawa 2009.

Kapelańska-Pręgowska J., Prawne i bioetyczne aspekty testów genetycznych, Warszawa 2011.

Kinsley N., The Use of Genetic Tests by the Individual Life Insurance Industry in South Africa, Johannesburg 2009.

Krishna D., DNA Testing for Eddy Curry? Creating a New Constitutional Protection, 9 U. Pa. J. Const. L. 1105 2007.

Lippert-Rasmussen K., Genetic Discrimination and Health Insurance, Res Publica 2015, t. 21, nr 2. (Crossref)

Motoc I.V., The International Law of Genetic Discrimination: The Power of ’Never Again’, w: New Technologies and Human Rights, red. T. Murphy, Oxford 2009. (Crossref)

Mukherjee S., Gen. Ukryta historia, tłum. J. Dierzgowski, Wołowiec 2017.

Plümecke T., Genes, Symptoms, and the “Asymptomatic Ill”: Toward a Broader Understanding of Genetic Discrimination, New Genetics and Society 2016, t. 35, nr 2. (Crossref)

Prawa człowieka wobec rozwoju biotechnologii, red. L. Kondratiewa-Bryzik, K. Sękowska-Kozłowska, Warszawa 2013.

RODO. Ogólne rozporządzenie o ochronie danych. Komentarz, red. E. Bielak-Jomaa, D. Lubasz, Warszawa 2017.

Stelmach J., Brożek B., Soniewicka M., Załuski W., Paradoksy bioetyki prawniczej, Warszawa 2010.

Wood T., Genetic Information Discrimination in Public Schools: A Common-Sense Exception, The University of the Pacific Law Review, t. 49, nr 2.


Published
2023-02-21


Kofin-Brończyk, K. (2023). Zakaz dyskryminacji genetycznej w prawie międzynarodowym publicznym. Studia Prawnicze KUL, (1), 165–180. https://doi.org/10.31743/sp.12871

Klaudia Kofin-Brończyk  klaudia.bronczyk@us.edu.pl
University of Silesia https://orcid.org/0000-0003-4273-2595



License

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

The Author declares that the Work is original and does not infringe any personal or proprietary rights of third parties, and that She/He has unlimited rights to the Work which are the subject of the Agreement signed with the Publisher.

Author of the publication transfers to the Publisher the economic copyrights to the Work (article) submitted for publication, free of charge, without time and territorial restrictions in the following fields of use:

a) production, recording and reproduction of the copies of the Work by a specific technique, including printing, magnetic recording and digital technology;

b) marketing, lending or rental of the original or copies of the Work, and distribution in the form of open access, in accordance with the license Creative Commons Attribution 4.0 International (also known as CC BY), available at: https://creativecommons.org/licenses/by/4.0/legalcode.pl;

c) inclusing the Work in the composition of the collective work;

d) publishing on the website of the journal, public performance, exhibition, display, reproduction, broadcasting and rebroadcasting, and making the Work available to the public in such a way that everyone can have access to them in a place and at a time chosen by them;

e) uploading the Work in an electronic form to electronic platforms or other uploading of the Work in an electronic form to the Internet or other network.

The proprietary copyright to the Work is transferred to the Publisher free of charge upon signing the contract wit the Publisher.